================================================================= == -- ALS INTEREST GROUP -- == == ALS DIGEST (#24, 17 FEB 93) == == To subscribe, unsubscribe, contribute notes, get back == == issues, etc., please send E-mail to: == == bro@huey.met.fsu.edu (Bob Broedel) == ================================================================= (1) ===== MORE FROM RUSSIA ... ========== > >Date : Mon, 15 Feb 93 15:13:14 +0300 >To : broedel@geomag.gly.fsu.edu >From : icla@immoscow.gtc.de (ICLA mailbox) >Subject: REP.ON: TO ERIK MINSKER > >Dear Mr.Broedel, >Thank yoou very much for your answer. We are very interested in >ALS DIGEST, but we are able to subscribe only if it will be free >of charge. We want to contribute notes. We want also to obtain >hard copy of issues of the ALS messages. My mailing home address: >-------------------------------------------------------------- >- 129041 ROSSIYA >- G. Moscow >- UL. Bolschaya Pereyaslavskaya, dom 3, corp 2, kv 60 >- Minsker, Erik >- === RUSSIA === >-------------------------------------------------------------- >I hope to be keeping in contact with you. >Syncerely, Erik I.Minsker,M.D.,D.Sc. > Dear Erik, It costs nothing to subscribe but my understanding of the situation in Russia is that you pay money to *receive* international e-mail messages (not just to *send* ... correct?). I do not want to add your e-mail address to the list if that will cost you a lot of money to receive the messages. Let me know if/when you want to be added to the e-mail list for ALS DIGEST. In the mean time I will send you hardcopy of back issues by way of air mail. Looking forward to hearing from you. rgds,bro NOTE TO OTHER READERS: I think it would be a good idea if people who have extra copies of books, magazines, pamphlets, articles, etc. about ALS were to surface mail them to Erik. If surface mail is used it will not be too expensive for you. If packages contain only items mentioned above he should be able to receive them without paying customs duty charges. (2) ===== Building the network ... ========== ===== Date : Mon, 15 Feb 93 14:47:01 -0500 From : "Dr. Kenneth Fischbeck" To : broedel@geomag.gly.fsu.edu Subject: ALS discussion group I am interested in your e-mail-based ALS discussion group. We do research on Kennedy's disease, an adult-onset form of spinal muscular atrophy which resembles ALS. K. Fischbeck, Neurology Dept. University of Pennsylvania Philadelphia, PA 19104 e-mail: fischbeck@a1.mscf.upenn.edu ===== Date: Fri, 12 Feb 1993 12:56 CDT From: To : broedel@FSU.BITNET Bob, I would be willing to participate in your proposed E-mail net. I'm a neurologist presently involved in basic research related to ALS and in patient care and rehabilitation. rod f, m.d. ===== From : debu@saha.ernet.in () To : broedel@geomag.gly.fsu.edu Subject: Reply re ALS Date : Mon, 15 Feb 93 15:00:43 IST Dear Bro, Thanks for your enquiry about ALS. It was good to hear from you after so long. I have passed on your request to my wife who will in turn hand over the same to her friends in neurology. They will have to communicate through me, if they decide to use E-mail because the medical college isn't yet hooked onto the E-mail network. I haven't yet come across any nation-wide support group dealing with this disease. If however I should come across any such ad, I shall let you know and also give them your address. Sincerely, Deb (E-mail: debu@saha.ernet.in) ===== Date : Tue, 16 Feb 1993 11:13:14 +1100 To : broedel@geomag.gly.fsu.edu From : M.Duncan@unsw.edu.au Subject: Re: ALS "Lou Gehrigs Disease" Dear Mr. Broedel Thanks for your note re: ALS. I am happy to be involved. I would be interested in exchanging info. Regards, Mark Duncan (3) ===== The search continues ... ========== ENTER SUBJECT WORDS -> clinical trials AND amyotrophic lateral sclerosis System is searching the EMBASE database, subject to Terms and Conditions, copyrighted 1993 by Elsevier Science Publishers ESP B.V./Excerpta Medica, all rights reserved, and available through BRS Information Technologies. ==== AU Munsat-T-L. Taft-J. Jackson-I-M-D. Andres-P-L. Hollander-D. Skerry-L. Ordman-M. Kasdon-D. Finison-L. TI Intrathecal thyrotropin-releasing hormone does not alter the progressive course of ALS: Experience with an intrathecal drug delivery system. SO NEUROLOGY. 1992, 42/5 (1049-1053). ==== AU Tindall-R-S-A. TI Immunointervention with cyclosporin A in autoimmune neurological disorders. SO J-AUTOIMMUN. 1992, 5/SUPPL. A (301-313). ==== AU Kroin-J-S. TI Intrathecal drug administration. Present use and future trends. SO CLIN-PHARMACOKIN. 1992, 22/5 (319-326). ==== AU Westarp-M-E. Westphal-K-P. Kolde-G. Wollinsky-K-H. Westarp-M-P. Dickob-M. Kornhuber-H-H. TI Dermal, serological and CSF changes in amyotrophic lateral sclerosis with and without intrathecal interferon beta treatment. SO INT-J-CLIN-PHARMACOL-THER-TOXICOL. 1992, 30/3 (81-93). ==== AU Rowland-L-P. TI Surgical treatment of cervical spondylotic myelopathy: Time for a controlled trial. SO NEUROLOGY. 1992, 42/1 (5-13). ==== AU Blin-O. Pouget-J. Aubrespy-G. Guelton-C. Crevat-A. Serratrice-G. TI A double-blind placebo-controlled trial of L-threonine in amyotrophic lateral sclerosis. SO J-NEUROL. 1992, 239/2 (79-81). ==== AU Lindvall-O. TI Prospects of transplantation in human neurodegenerative diseases. SO TRENDS-NEUROSCI. 1991, 14/8 (376-384). ==== AU Overgaard-K. Werdelin-L. Sorensen-H. Mogensen-P. Boysen-G. TI Cytotoxic activity in plasma from patients with amyotrophic lateral sclerosis. SO NEUROLOGY. 1991, 41/6 (925-927). ==== AU Massarotti-M. Cornelli-U. Samson-J-C. Jack-D-B. TI An evaluation of the immunological risk of ganglioside ('Cronassial') injections. SO DRUG-INVEST. 1991, 3/2 (112-117). ==== AU Congia-S. Tronci-S. Ledda-M. Porcella-A. Coppola-G. TI Low doses of TRH in amyotrophic lateral sclerosis and in other neurological diseases. SO ITAL-J-NEUROL-SCI. 1991, 12/2 (193-198). ==== AU Roufs-J-B. TI L-threonine as a symptomatic treatment for amyotrophic lateral sclerosis (ALS). SO MED-HYPOTHESES. 1991, 34/1 (20-23). ==== AU Bonuccelli-U. Nuti-A. Rossi-B. Siciliano-G. Piccini-P. Grasso-L. Martino-E. Muratorio-A. TI Thyroid function and oral TRH in amyotrophic lateral sclerosis. SO NEW-TRENDS-CLIN-NEUROPHARMACOL. 1990, 4/1 (33-42). ==== AU Frey-F-J. TI Cyclosporine in autoimmune diseases. TT CYCLOSPORIN BEI AUTOIMMUNKRANKHEITEN. SO SCHWEIZ-MED-WOCHENSCHR. 1990, 120/21 (772-786). ==== AU Turski-L. TI N-methyl-D-aspartate receptor complex. Different sites for regulation and clinical consequences. TT N-METHYL-D-ASPARTAT-REZEPTORKOMPLEX. VERSCHIEDENE STELLEN FUR REGULATION UND KLINISCHE KONSEQUENZEN. SO ARZNEIM-FORSCH-DRUG-RES. 1990, 40/5 (511-514). ==== AU Hartvig-P. Askmark-H. Aquilonius-S-M. Wiklund-L. Lindstrom-B. TI Clinical pharmacokinetics of intravenous and oral 9-amino-1,2,3,4-tetrahydroacridine, tacrine. SO EUR-J-CLIN-PHARMACOL. 1990, 38/3 (259-263). ==== AU Holaday-J-W. Long-J-B. Martinez-Arizala-A. Chen-H-S. Reynolds-D-G. Gurll-N-J. TI Effects of TRH in circulatory shock and central nervous system ischemia. SO ANN-NEW-YORK-ACAD-SCI. 1989, 553/- (370-379). ==== AU Blin-O. Serratrice-G. Pouget-J. Aubrespy-G. Guelton-C. Crevat-A. TI Short-term double-blind drug versus placebo trial of L-threonine in amyotrophic lateral sclerosis. TT ESSAI EN DOUBLE AVEUGLE CONTRE PLACEBO A COURT TERME DE LA L-THREONINE DANS LA SCLEROSE LATERALE AMYOTROPHIQUE. SO PRESSE-MED. 1989, 18/30 (1469-1470). ==== AU Guiloff-R-J. Modarres-Sadeghi-H. Stalberg-E. Rogers-H. TI Short-term stability of single motor unit recordings in motor neuron disease: A macro EMG study. SO J-NEUROL-NEUROSURG-PSYCHIATRY. 1988, 51/5 (671-676). ==== AU Mitsumoto-H. Hanson-M-R. Chad-D-A. TI Amyotrophic lateral sclerosis. Recent Advances in pathogenesis and therapeutic trials. SO ARCH-NEUROL. 1988, 45/2 (189-202). ==== AU Appel-V. Stewart-S-S. Smith-G. Appel-S-H. TI A rating scale for amyotrophic lateral sclerosis: Description and preliminary experience. SO ANN-NEUROL. 1987, 22/3 (328-333). ==== AU Okamoto-Y. Maehara-K. Mase-K. et al. TI Laboratory and clinical studies on HBK. SO CHEMOTHERAPY-JAPAN. 1986, 34/SUPPL. 1 (247-260). ==== AU Olarte-M-R. Gersten-J-C. Zabriskie-J. Rowland-L-P. TI Transfer factor is ineffective in amyotrophic lateral sclerosis. SO ANN-NEUROL. 1979, 5/4 (385-388). == end of als 24 ==