:
TO  : MTS@gnv.ifas.ufl.edu ........... Tom Sanford
    : murray@seattleu.edu ............ MaryAnne Murray
    : stever@tessi.com ............... Steve Rintala
    : SMIRNES@IMIHSRA.BITNET ......... S. Palazzi, MD
    : PHIP@TEMPLEVM.BITNET ........... Tina Phipps, Ph.D.
    : RRICCIUT@WCU.BITNET ............ Rae Ricciuti
    : andrew@uaneuro.uah.ualberta.ca . Andrew Penn, MD
    : IEQZ96M@TJUVM.BITNET ........... Michele Lee
    :
FROM: broedel@geomag.gly.fsu.edu ..... Bob Broedel
    :
RE  : ALS DISCUSSION GROUP UPDATES
    :
 
====
Washington Post   12/31       CORRECTION
 
   In an article last Thursday about a chemical called BDNF that 
halts the death of injured nerve cells, the ownership of the 
substance's patent was misstated. The BDNF patent is held by 
Regeneron Pharmaceuticals of Tarrytown, N.Y., and is sublicensed 
to Amgen Inc. of Thousand Oaks, Calif.
====
 
>
>Date: 31 Dec 92 11:29:56 EST
>From: Michele Lee  <IEQZ96M%tjuvm.bitnet@TJUVM.TJU.EDU>
>To: "Bob Broedel" <broedel@geomag.gly.fsu.edu>
>Subject: ALS and E-Mail
>
>Dear Mr. Broedel,
>     I used to work for a five-university study on ALS.  We
>were connected by E-mail.  However, the study was disbanded 
>last year (1992-lack of funding!) and I went to medical school.
>You can still get information, though.  I know that the 
>University of Colorado, which I worked for, are doing clinical 
>drug trials on their own with Regeneron Pharmaceuticals.
>Contact Kathy Singh, Data Coordinator, at (303) 270-7046 for 
>information. They were taking eligible volunteers from across 
>the country, but I don't know the recent status and requirements 
>for participation in the drug trials. Kathy will also know 
>other places.
>     Dr. Benjamin R. Brooks in the University of Wisconsin
>is on E-mail, but I can't remember his e-mail address off
>hand.  I will look it up and send it to you if you're
>interested.  He is a big name in the ALS research field,
>and will be able to answer questions.
>    After working with ALS patients and their families for
>three years, I am always interested in information.  I've
>noticed the strength and inventiveness of patients and their
>families in coping with this terrible disease.  The disease
>is baffling to doctors, but there are a lot of good people
>working to deal with the symptoms as well as looking for
>a cure.
>   Good luck in your search for information!
>    Michele Lee
>
 
Michele ...
Thanks for the message. We would appreciate any help you
can offer re collecting relevant e-mail addresses, re any
other helpful suggestions, etc.
Hope to be keeping in touch. rgds,bro

== end of als 6 ==